PAHSSC FAALİYETLERİYLE HAZİRAN AYINDA AVRUPA AKCİĞER VAKFI - ELF, 'YE HABER OLDU - 2021.06.03

PAHSSc Avrupa'ya sesini duyuran Türkiye'nin #TEK akciğer hastaları dayanışma derneği faaliyetleriyle Avrupa Akciğer Vakfı, European Lung Fountaion (ELF)'nın aylık bülteninde haber oldu. Bu süreçte emekleri, katkıları ve özverileriyle yanımızda olan herkese gönülden teşekkür ediyor, hastalarımız kadar hasta yakınlarımızı da derneğimize üye olmaya davet ediyoruz.

Sizinle daha güçlüyüz.

https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-june-2021/

PAHSSc gets involved with World PH Day event and organises online pulmonary rehabilitation programme

Activities by the Pulmonary Hypertension and Scleroderma Patient Association (PAHSSc) in May were mainly centred around World PH Day. The association was part of an event organised by the Turkish Cardiology Association, where they put forward questions gathered from their patients, and prominent doctors in their fields answered them online. They also filmed their own video where they discussed topics including early diagnosis, the risks of pregnancy in PH and how to live well with PH. The organisation laid the foundation for an online pulmonary rehabilitation series supervised by a rehabilitation expert. They believe this will be a well-attended event as PH patients have been staying in their houses for the past 13 months and this is a great opportunity for them to be able to use their bodies, under supervision.

They continued strengthening their association in collaboration with the Social Innovation Center by re-thinking and modifying their vision, mission, values on the way to becoming more cohesive institution.

Find out more

https://twitter.com/EuropeanLung/status/1405183481760583684

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