PAHSSC FAALİYETLERİYLE TEMMUZ AYINDA AVRUPA AKCİĞER VAKFI - ELF, 'YE HABER OLDU - 2021.07.05

PAHSSc Avrupa'ya sesini duyuran Türkiye'nin #TEK akciğer hastaları dayanışma derneği faaliyetleriyle Avrupa Akciğer Vakfı, European Lung Foundation (ELF)'nın aylık bülteninde haber oldu.

Bu süreçte emekleri, katkıları ve özverileriyle yanımızda olan herkese gönülden teşekkür ediyor, hastalarımız kadar hasta yakınlarımızı da derneğimize üye olmaya davet ediyoruz.  Sizinle daha güçlüyüz. 

https://europeanlung.org/en/news-and-blog/patient-organisation-round-up-july-2021/

PAHSSc carries out symposium on scleroderma and attends PHA International meetings

Throughout June, the Pulmonary Hypertension and Scleroderma Patient Association (PAHSSc) focused many of their activities around scleroderma awareness month. 2 June was a big day for them as they planned, organised and carried out a symposium on scleroderma in collaboration with three universities, leading doctors in this field, physiotherapists and of course patients and caregivers. Posters, announcements, relations with the healthcare workers, and the technical infrastructure of this online day were all done by their patients.

PAHSSc also attended a meeting organised by PHA International where the celebrations for 5 May, World PH Day in different countries were evaluated.

As usual, their online series of patient stories continued on their Instagram page with different voices, different illnesses and different cases.

Read more news from PAHSSc

https://twitter.com/EuropeanLung/status/1415597335279702019

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